Tupeak Hope

So today I come home from my second overnight sleep study in three weeks with more questions than answers. To say I am frustrated, confused, and even a bit defeated would all be accurate. This may seem confusing when you read why below, but I promise to make sense of it. It’s important to keep in mind that medicine is rarely simple and especially for those of us with multiple or complex medical conditions it gets increasingly complicated.

Hello all! It’s been a crazy few weeks with lots of stuff going on behind the scenes here at Tupeak Hope. The planning stages for becoming an official non-profit have begun and networking is well under way in order to attempt to garner support and of course funding in order to make this happen sooner rather than later.

I am committed to making this dream become a reality in order to help bridge the gaps between patients and providers as well as to become a resource through which the proper services can be connected with those that need it most and may not be aware of how to find resources in their area of need.

Ever have one of those days? You know exactly what I mean. One of those days where it seems from the moment you wake up until the moment you finally lay your head back down at night where it seems as if the proverbial Mr. Murphy has touched everything you decide to do just to give you some unexpected challenges.

One of those days where everything you try to do, no matter the amount of planning, preparation, and calculation you put into it seems to turn into a huge, growing flaming pile of donkey doo-doo.

When dealing with the daily challenges of chronic illness one never truly escapes the grieving process. We may, given enough time after diagnosis, learn how to cope with our new lives but glimpses of the past can seep in time and again, when we least expect it. Let me share with you just one such example of how this can happen, or at least how it happened to me recently.

I’ve been trying to figure out how to share this for hours since it happened. I am going to try to write this so that it makes the most sense, but beg your forgiveness if it is a bit disjointed in its presentation. I thought a great deal before deciding to write this post and decided I must share it so that others who may encounter similar situations can know that they are not alone.